RSNN workshop 2022: presentation files and recording now available

14 September 2022
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On 5 September the RSNN organized its Annual Workshop. We are looking back at a successful afternoon with great interaction, inspiring speakers and insights from various stakeholder groups (patients, industry, academia, and regulators) on the topic of patient preferences.

The presentation files from the speakers, the recording of the livestream and a selection of photos from the workshop are available below. During the dinner session the RSNN special interest groups (RSNN SIG) were launched with a first Special interest group on Advanced Therapies, the presentation file from this launch is included as well. RSNN SIGs are open and inclusive initiatives and subject to continuous development. Are you interested in contributing? Please contact

The full scientific report of the workshop is being prepared and will be published soon.


Presentation files (in PDF):

Peter Mol - Opening

Cristina Guerrero Paez (Dutch Breast Cancer Society) - I am just a patient: am I just a patient?

Francesco Pignatti (EMA) - Patient preferences in regulatory decisions and current challenges

Stan van de Graaf (Amsterdam UMC) - Patient participation in rare liver disease research

Cathelijne de Gram (Janssen) - Industry Perspective on Patient Engagement in Drug Development and Regulatory Decision Making

Isabelle Huys (KU Leuven, EMA) - The PREFER final recommendations and future research needs

Hans Hillege (UMCG/EMA), Douwe Postmus (UMCG) & Sonia Roldan Muñoz (UMCG) - Quantitative methods for the benefit-risk assessment, a hands-on exercise

Rosanne Janssens (KU Leuven) – Experience-based learnings regarding the design, conduct and analysis of patient preference studies incorporating qualitative research methods

Liese Barbier (KU Leuven) – EMA/EUnetHTA qualification of the IMI PREFER Patient Preference Framework: key outcomes, value and implications

Renske ten Ham (UMC Utrecht), Lourens Bloem (Utrecht University) - RSNN Special Interest Groups launch


Livestream recording
Youtube link